Pray for Grant

Browsing Archive: June, 2009

Monday, June 29 - 8:45 p.m.

Posted by Melanie McTaggart on Tuesday, June 30, 2009,
Well, we have had a great couple of days. It is so nice to be home. Grant seems to be getting stronger everyday. Today, he was able to hold his own weight and was able to crawl. It seems like such a minor thing to those reading this, but for us, it is huge! It is showing us that the steroids are wearing off and his muscles are starting to work again.

On Friday, David and I went to the movies and on Saturday we went out to dinner to celebrate his 42nd birthday. We had a great time and it was s...
Continue reading ...
 

Saturday - June 27 - 8:53 a.m.

Posted by Melanie McTaggart on Saturday, June 27, 2009,
Grant is getting some of his spirit back - and some of his strength! He has been quite sick the past few days, but even with that, he is wanting to be with the family, is talking more and laughing. He actually tried to get off the couch on his own yesterday and stood up. It is so great to see him this way.

We head back for the hospital for 6 days starting on Wed. Claire is going to go stay with her grandparents in Waco and is very excited about it.

Tonight, Mike and Ashley are coming over to w...
Continue reading ...
 

Thursday, June 25 - 6:47 a.m.

Posted by Melanie McTaggart on Thursday, June 25, 2009,
As rough as a day it was for us yesterday, we did get some good news. Grant's MRD (minimal residual disease) is ZERO!!! He is responding to treatment just perfectly.

Even though he is doing so well, they still consider him VERY HIGH RISK and will keep him on the protocal that they have scheduled for him. The next 6 months will require a lot of intense treatment. I thought the last month was bad, but the next 6 months look a thousand times worse.

We have 11 4-6 day hospital stays scheduled befor...
Continue reading ...
 

Wednesday, June 24 - 11:40 a.m.

Posted by Melanie McTaggart on Wednesday, June 24, 2009,
Okay. Hard day for me. We are up at clinic today and Grant is getting his bone marrow biopsy and his spinal tap. The results of these tests will tell us in the next 3-5 days what his Minimal Residual Disease (MRD) is. I pray that is it 0! That would be so wonderful. That would mean that he did not have any leukemia left in his body. This test is 1000 times more sensitive than the one they did a few weeks ago.

Because Grant is considered High Risk becuase of the PH positive chromosome, he is ge...
Continue reading ...
 

Tuesday - June 23 - 1:00 p.m.

Posted by Melanie McTaggart on Tuesday, June 23, 2009,
We are home! We got released yesterday afternoon. The Drs are pretty confident that Grant's mobility issues will be resolved once he goes through some physical therapy and gets off the steriods. Gosh I hope so.

He had his first appointment with Lake Houston PT this morning. He hated every second of it, but I think with all the homework we have, he will learn to just go with it. The girls up there are just wonderful with him.

I picked up his homeschooling curriculium today and can't wait to sta...
Continue reading ...
 

Sunday - June 21 - 1.54 p.m.

Posted by Melanie McTaggart on Sunday, June 21, 2009,

Well we got some scary news early this morning that turned into not so scary news this afternoon. Grant's MRI showed that his spine is fine, but he has some white matter in his brain. Basically it shows softening of the lining of the nerves in his brain. This discovery had us pretty freaked out this morning. We were told that is could be what was causing his walking issues that may, or may not, fix itself.

After we spoked with the attending Dr and the neurologists, we now do not think that the...


Continue reading ...
 

Saturday - June 20 - 9:17 p.m.

Posted by Melanie McTaggart on Sunday, June 21, 2009,

I told David today that the one word that can describe this month is "waiting." That is all we do now. We wait. We wait to get tests, we wait to get the results and then we wait to go home.

Today we waited, and waited, and waited. Finally, this is what happened:

  1. The dermatologist Drs came by, looked at Grant's spots and left. They were not concerned.
  2. The infectious disease Drs came in and looked at Grant and ordered more tests. They have no conclusions. They are testing him for several virus...


Continue reading ...
 

Friday - June 19 - 1:43 p.m.

Posted by Melanie McTaggart on Friday, June 19, 2009,
Well - we are getting admitted again. We were home less than 24 hours.

This time, they will be conduting an MRI on his Brain and Spine to see if it is causing issues with his walking.
They will have a dermotologist look at his spots.
They will have an infectious disease guy look at his spots.
They will look at the puss pocket on his finger that just showed up.
They will do a culture of the opening of his incision.

I'll update later. What a roller coaster. At one point this morning we were told he ...
Continue reading ...
 

Friday - June 19 - 8:15 a.m.

Posted by Melanie McTaggart on Friday, June 19, 2009,
We got to come home late yesterday afternoon. It is so nice to be home. I made a cake for everyone that said Welcome Home. It was the first night in over two weeks that we have all been under the same roof.

Grant looks better today. His swelling from the fluids seems to be going down. My concerns today are that he still does not have balance or strength to walk with out falling and can not pull himself up off the floor AND his port insicion was leaking fluid last night. I keep trynig to call ...
Continue reading ...
 

Wednesday, June 17 - 7:59 p.m.

Posted by Melanie McTaggart on Thursday, June 18, 2009,
We had a pretty good day. Grant was in good spirits for most of the day and Claire was a good girl up here all day.

We are hoping to go home tomorrow. Grant is getting more bruise-like spots on his stomach and his back and is full of air. He keeps saying his tummy hurts. The Dr.s are puzzeled. Most of his labs have come back pretty good. He does have a sodium issue though. Apparently he is storing too much water and there is not enough sodium in his blood. They are concerned a little about th...
Continue reading ...
 

Wednesday - June 17 - 10:21 a.m.

Posted by Melanie McTaggart on Wednesday, June 17, 2009,
We just talked to the Dr.s and we will be staying another day. They just want to wait until at least 3:00 p.m. tomorrow to make sure nothing shows up in his blood culture and to see how he reacts to the Chemo he is scheduled to receive today. Claire is going to hang out with me up here today and spend the night with me. She is very excited! When Grant goes to sleep, we will sneak off to the play room and to see the trains!

Melanie
Continue reading ...
 

Wednesday, June 17 - 9:03 a.m.

Posted by Melanie McTaggart on Wednesday, June 17, 2009,
Grant seems to be doing okay so far. No test has come back yet stating that he has an infection. We are hoping we will get to go home today. His liver function is a bit off, but some of that is due to diet and some due to the Chemo. We are waiting to talk with some of the other doctors this afternoon.

I think I may have scared a few people about the mumps exposure that Grant had. On May 26 while in the recovery room, there was a staff member in the area that had the mumps. It was not anyone th...
Continue reading ...
 

Tuesday, June 16, 6:20 a.m.

Posted by Melanie McTaggart on Tuesday, June 16, 2009,
Well we are officially checked in to TX Children's again. We are in room 30 and expect to be her until Thursday. We are in isolation because of the threat that he may have an infection that could spread to the other kids here. This is terrible because he can not leave the room this time to go play or walk around the floor. Also, all the staff has to wear masks when they come in our room because Grant has been exposed to the Mumps in the recovery room on May 26th. Apparently there was a staff ...
Continue reading ...
 

Monday - June 15, 3:31 p.m.

Posted by Melanie McTaggart on Monday, June 15, 2009,
We are checking in. I'll update more when I know more. Right now his counts look okay. His ANC is actually at 1500, which is good, but it could mean he is fighting an infection. They will run more tests, do some chest X-rays, etc...
Continue reading ...
 

Monday, June 15 - 3:16 p.m.

Posted by Melanie McTaggart on Monday, June 15, 2009,

Well - we are back up at the clinic in the Urgent Care area. Grant is just looking terrible and has no energy. He was so weak this morning that he could not pull himself up off the floor to get back in bed. He also has these little bruises on his tummy. So, I called the clinic and they told me to bring him in.

So far, they have accessed his port and taken blood to check his red blood cell counts and to see if he may be heading toward getting an infection. They are leaning toward admitting him...


Continue reading ...
 

Sunday, June 14 - 9:41 a.m.

Posted by Melanie McTaggart on Sunday, June 14, 2009,
Grant's temperature has gone back down!! So we are not worried anymore.

I took the steri-strips off his port incision this morning. The glue is all gone, but that one side that originally started to open up is still not closed all the way. So, I cleaned up the area with some peroxide and pulled the skin back closed with a new steri-strip that they sent home with me. I really would like this thing to hurry up and heal so I can stop worring about it.

Oh - Here is some good news! Grant did not thr...
Continue reading ...
 

Saturday, June 13 - 7:32 p.m.

Posted by Melanie McTaggart on Sunday, June 14, 2009,
Rough day. For me at least. The morning was great though. We took Grant to the blueberry farm to pick blueberries. He enjoyed it for about 5 minutes then he got hot, had a snowcone and we headed for my parents pool. He got in the pool for about 10 minutes and then felt bad and was ready to go home. Poor guy just does not have a lot of energy right now. Seeing him like this just gets to me. I tried to take a nap when he did, but my mind keep wandering back to his cancer. I ended up in tears an...
Continue reading ...
 

Friday, June 12 - 1:17 p.m.

Posted by Melanie McTaggart on Friday, June 12, 2009,
Finally - I am able to sit down and update this.

Yesterday was kind of a day of chores for me. My dad was sweet enough to come sit with Grant for two hours so I could go shopping for some birthday and father's day gifts, pick up perscriptions at two different pharmacies and go grocery shopping. It was good for me to get out. After running around, I picked up some lunch and headed home with Grant's Gleevac - his miracle drug!!!

My poor father had to watch me attempt to give him his medicine. Th...
Continue reading ...
 

Wednesday, June 10 - 9:07 p.m.

Posted by Melanie McTaggart on Thursday, June 11, 2009,
Well - Grant will be 3 years old in exactly 1 month!! I can't beleive how fast time has gone by. I feel so blessed to have him in my life.

Today we went to clinic. He received some IV fluids and Chemo through his port and was put on a new protocol. They gave him a new steroid and antiacid. These are in pill form. He will also start the Gleevac tomorrow - which is also pill form. We will only have one liquid now - which is an antibiotic. Hopefully the pill form will work out better. We just hav...
Continue reading ...
 

Tuesday, June 9 - 9:09 p.m.

Posted by Melanie McTaggart on Wednesday, June 10, 2009,

Today was another rough day. Just when I think Grant is going to take his medicine better - or easier - we take a turn for the worse. This morning we had to re-do the meds 4 - yes FOUR - times. He gagged and threw up 3 times in a row. I lost it and was very frustrated and ended up crying. I had been able to hold myself together pretty well until last night and then this morning I was a mess. I felt so bad for getting so upset.

Grant finally took his 4 meds this morning and keep them down, but...


Continue reading ...
 

Monday, June 8 - 5:44 p.m.

Posted by Melanie McTaggart on Monday, June 8, 2009,
Today has been a bit of a rough one. Grant has felt pretty bad all day. He got sick this morning but I can tell he wants to get sick again. He tells me he is hungry, but then does not want to eat much and then when he does, he says his tummy hurts. I feel so bad for the little guy. He is asleep now. I need to go wake him up for his meds. Hopefully he will get some much needed sleep tonight.
Continue reading ...
 

Sunday, June 7 - 3:51 p.m.

Posted by Melanie McTaggart on Sunday, June 7, 2009,
Well - Grant is finally sleeping!! The meds have finally kicked in and he is starving ALL THE TIME. I think he was up every two hours last night begging for more food. I have never seen him eat like this. And he likes to eat wierd things - like bean tacos for breakfast. This morning he had 4 pieces of toast, a bowl of cherrios, and a bag of goldfish. Then he asked me to go to Sonic to get him cheese sticks! We have decided that we are going to have to try and control what he eats a bit more. ...
Continue reading ...
 

Friday - June 5 - 2:56 p.m.

Posted by Melanie McTaggart on Friday, June 5, 2009,
Sorry I did not get to update this yesterday. It was just a busy day!

Grant has started to get sick from the Chemo. Poor little guy got sick in the car yesterday on the way to get his hair shaved. David had to swing by Children's Place to get him some new clothes so we could still make his appointment. He got his hair cut by Taylor at The Conservatory Day Spa in Kingwood. She did a great job. I can not say enough good things about the staff and ownership there. Thank you so much for everything...
Continue reading ...
 

Wednesday, June 3 - 12:26 p.m.

Posted by Melanie McTaggart on Wednesday, June 3, 2009,
Uhh - I hate this. We got into PACU so they are able to to the bone marrow biopsy and the spinal tap. They had me hold him as he fell asleep and then I had to lay him on the table. I was sooooo not prepared for that - for seeing him like that.
Continue reading ...
 

Wednesday, June 3 - 8:35 a.m.

Posted by Melanie McTaggart on Wednesday, June 3, 2009,
Sorry I did not get a chance to update this site yesterday. It was a busy and stressful day yesterday. I hope today runs a little smoother.

We had to come to clinic yesterday to get platelets. When we got here, I had to remove a bandaid that was covering Grant's port and put some cream on it. Anyway, when I started to pull off the bandage, the glue they used to close the incision where they put his port in started to pull off and the incision started to open up!! I freaked and told the nurses ...
Continue reading ...
 

Monday, June 1 - 3:16 p.m

Posted by Melanie McTaggart on Monday, June 1, 2009,
We are home and got good news. I guess things were looking up for us today because David and Claire were the 100th customers at Chickfila and got lunch for free! AND Grant received a new Portable DVD player from the hopsital which he was thrilled with. He got to watch movies during his time at Clinc which made everthing so much easier on him.

Anyway - Dr. Dreyer told me that a study, that is not published yet, came out on Friday that showed great results in kids with the the Philidelphia Chrom...
Continue reading ...
 

Monday, June 1 - 11:30 p.m.

Posted by Melanie McTaggart on Monday, June 1, 2009,

We are at TCC Clinic today. So far we have filled out paperwork and accessed Grant's port. He was a little scared, but did well. They have taken blood to run tests and now are are waiting to talk to the Dr. She said she had some good news for us, so I can't wait to hear what that is.

I'll update this as soon as we get home this afternoon.

Thanks again for everything!!!

Melanie


Continue reading ...
 
 
 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Browsing Archive: June, 2009

Monday, June 29 - 8:45 p.m.

Posted by Melanie McTaggart on Tuesday, June 30, 2009,
Well, we have had a great couple of days. It is so nice to be home. Grant seems to be getting stronger everyday. Today, he was able to hold his own weight and was able to crawl. It seems like such a minor thing to those reading this, but for us, it is huge! It is showing us that the steroids are wearing off and his muscles are starting to work again.

On Friday, David and I went to the movies and on Saturday we went out to dinner to celebrate his 42nd birthday. We had a great time and it was s...
Continue reading ...
 

Saturday - June 27 - 8:53 a.m.

Posted by Melanie McTaggart on Saturday, June 27, 2009,
Grant is getting some of his spirit back - and some of his strength! He has been quite sick the past few days, but even with that, he is wanting to be with the family, is talking more and laughing. He actually tried to get off the couch on his own yesterday and stood up. It is so great to see him this way.

We head back for the hospital for 6 days starting on Wed. Claire is going to go stay with her grandparents in Waco and is very excited about it.

Tonight, Mike and Ashley are coming over to w...
Continue reading ...
 

Thursday, June 25 - 6:47 a.m.

Posted by Melanie McTaggart on Thursday, June 25, 2009,
As rough as a day it was for us yesterday, we did get some good news. Grant's MRD (minimal residual disease) is ZERO!!! He is responding to treatment just perfectly.

Even though he is doing so well, they still consider him VERY HIGH RISK and will keep him on the protocal that they have scheduled for him. The next 6 months will require a lot of intense treatment. I thought the last month was bad, but the next 6 months look a thousand times worse.

We have 11 4-6 day hospital stays scheduled befor...
Continue reading ...
 

Wednesday, June 24 - 11:40 a.m.

Posted by Melanie McTaggart on Wednesday, June 24, 2009,
Okay. Hard day for me. We are up at clinic today and Grant is getting his bone marrow biopsy and his spinal tap. The results of these tests will tell us in the next 3-5 days what his Minimal Residual Disease (MRD) is. I pray that is it 0! That would be so wonderful. That would mean that he did not have any leukemia left in his body. This test is 1000 times more sensitive than the one they did a few weeks ago.

Because Grant is considered High Risk becuase of the PH positive chromosome, he is ge...
Continue reading ...
 

Tuesday - June 23 - 1:00 p.m.

Posted by Melanie McTaggart on Tuesday, June 23, 2009,
We are home! We got released yesterday afternoon. The Drs are pretty confident that Grant's mobility issues will be resolved once he goes through some physical therapy and gets off the steriods. Gosh I hope so.

He had his first appointment with Lake Houston PT this morning. He hated every second of it, but I think with all the homework we have, he will learn to just go with it. The girls up there are just wonderful with him.

I picked up his homeschooling curriculium today and can't wait to sta...
Continue reading ...
 

Sunday - June 21 - 1.54 p.m.

Posted by Melanie McTaggart on Sunday, June 21, 2009,

Well we got some scary news early this morning that turned into not so scary news this afternoon. Grant's MRI showed that his spine is fine, but he has some white matter in his brain. Basically it shows softening of the lining of the nerves in his brain. This discovery had us pretty freaked out this morning. We were told that is could be what was causing his walking issues that may, or may not, fix itself.

After we spoked with the attending Dr and the neurologists, we now do not think that the...


Continue reading ...
 

Saturday - June 20 - 9:17 p.m.

Posted by Melanie McTaggart on Sunday, June 21, 2009,

I told David today that the one word that can describe this month is "waiting." That is all we do now. We wait. We wait to get tests, we wait to get the results and then we wait to go home.

Today we waited, and waited, and waited. Finally, this is what happened:

  1. The dermatologist Drs came by, looked at Grant's spots and left. They were not concerned.
  2. The infectious disease Drs came in and looked at Grant and ordered more tests. They have no conclusions. They are testing him for several virus...


Continue reading ...
 

Friday - June 19 - 1:43 p.m.

Posted by Melanie McTaggart on Friday, June 19, 2009,
Well - we are getting admitted again. We were home less than 24 hours.

This time, they will be conduting an MRI on his Brain and Spine to see if it is causing issues with his walking.
They will have a dermotologist look at his spots.
They will have an infectious disease guy look at his spots.
They will look at the puss pocket on his finger that just showed up.
They will do a culture of the opening of his incision.

I'll update later. What a roller coaster. At one point this morning we were told he ...
Continue reading ...
 

Friday - June 19 - 8:15 a.m.

Posted by Melanie McTaggart on Friday, June 19, 2009,
We got to come home late yesterday afternoon. It is so nice to be home. I made a cake for everyone that said Welcome Home. It was the first night in over two weeks that we have all been under the same roof.

Grant looks better today. His swelling from the fluids seems to be going down. My concerns today are that he still does not have balance or strength to walk with out falling and can not pull himself up off the floor AND his port insicion was leaking fluid last night. I keep trynig to call ...
Continue reading ...
 

Wednesday, June 17 - 7:59 p.m.

Posted by Melanie McTaggart on Thursday, June 18, 2009,
We had a pretty good day. Grant was in good spirits for most of the day and Claire was a good girl up here all day.

We are hoping to go home tomorrow. Grant is getting more bruise-like spots on his stomach and his back and is full of air. He keeps saying his tummy hurts. The Dr.s are puzzeled. Most of his labs have come back pretty good. He does have a sodium issue though. Apparently he is storing too much water and there is not enough sodium in his blood. They are concerned a little about th...
Continue reading ...
 

Wednesday - June 17 - 10:21 a.m.

Posted by Melanie McTaggart on Wednesday, June 17, 2009,
We just talked to the Dr.s and we will be staying another day. They just want to wait until at least 3:00 p.m. tomorrow to make sure nothing shows up in his blood culture and to see how he reacts to the Chemo he is scheduled to receive today. Claire is going to hang out with me up here today and spend the night with me. She is very excited! When Grant goes to sleep, we will sneak off to the play room and to see the trains!

Melanie
Continue reading ...
 

Wednesday, June 17 - 9:03 a.m.

Posted by Melanie McTaggart on Wednesday, June 17, 2009,
Grant seems to be doing okay so far. No test has come back yet stating that he has an infection. We are hoping we will get to go home today. His liver function is a bit off, but some of that is due to diet and some due to the Chemo. We are waiting to talk with some of the other doctors this afternoon.

I think I may have scared a few people about the mumps exposure that Grant had. On May 26 while in the recovery room, there was a staff member in the area that had the mumps. It was not anyone th...
Continue reading ...
 

Tuesday, June 16, 6:20 a.m.

Posted by Melanie McTaggart on Tuesday, June 16, 2009,
Well we are officially checked in to TX Children's again. We are in room 30 and expect to be her until Thursday. We are in isolation because of the threat that he may have an infection that could spread to the other kids here. This is terrible because he can not leave the room this time to go play or walk around the floor. Also, all the staff has to wear masks when they come in our room because Grant has been exposed to the Mumps in the recovery room on May 26th. Apparently there was a staff ...
Continue reading ...
 

Monday - June 15, 3:31 p.m.

Posted by Melanie McTaggart on Monday, June 15, 2009,
We are checking in. I'll update more when I know more. Right now his counts look okay. His ANC is actually at 1500, which is good, but it could mean he is fighting an infection. They will run more tests, do some chest X-rays, etc...
Continue reading ...
 

Monday, June 15 - 3:16 p.m.

Posted by Melanie McTaggart on Monday, June 15, 2009,

Well - we are back up at the clinic in the Urgent Care area. Grant is just looking terrible and has no energy. He was so weak this morning that he could not pull himself up off the floor to get back in bed. He also has these little bruises on his tummy. So, I called the clinic and they told me to bring him in.

So far, they have accessed his port and taken blood to check his red blood cell counts and to see if he may be heading toward getting an infection. They are leaning toward admitting him...


Continue reading ...
 

Sunday, June 14 - 9:41 a.m.

Posted by Melanie McTaggart on Sunday, June 14, 2009,
Grant's temperature has gone back down!! So we are not worried anymore.

I took the steri-strips off his port incision this morning. The glue is all gone, but that one side that originally started to open up is still not closed all the way. So, I cleaned up the area with some peroxide and pulled the skin back closed with a new steri-strip that they sent home with me. I really would like this thing to hurry up and heal so I can stop worring about it.

Oh - Here is some good news! Grant did not thr...
Continue reading ...
 

Saturday, June 13 - 7:32 p.m.

Posted by Melanie McTaggart on Sunday, June 14, 2009,
Rough day. For me at least. The morning was great though. We took Grant to the blueberry farm to pick blueberries. He enjoyed it for about 5 minutes then he got hot, had a snowcone and we headed for my parents pool. He got in the pool for about 10 minutes and then felt bad and was ready to go home. Poor guy just does not have a lot of energy right now. Seeing him like this just gets to me. I tried to take a nap when he did, but my mind keep wandering back to his cancer. I ended up in tears an...
Continue reading ...
 

Friday, June 12 - 1:17 p.m.

Posted by Melanie McTaggart on Friday, June 12, 2009,
Finally - I am able to sit down and update this.

Yesterday was kind of a day of chores for me. My dad was sweet enough to come sit with Grant for two hours so I could go shopping for some birthday and father's day gifts, pick up perscriptions at two different pharmacies and go grocery shopping. It was good for me to get out. After running around, I picked up some lunch and headed home with Grant's Gleevac - his miracle drug!!!

My poor father had to watch me attempt to give him his medicine. Th...
Continue reading ...
 

Wednesday, June 10 - 9:07 p.m.

Posted by Melanie McTaggart on Thursday, June 11, 2009,
Well - Grant will be 3 years old in exactly 1 month!! I can't beleive how fast time has gone by. I feel so blessed to have him in my life.

Today we went to clinic. He received some IV fluids and Chemo through his port and was put on a new protocol. They gave him a new steroid and antiacid. These are in pill form. He will also start the Gleevac tomorrow - which is also pill form. We will only have one liquid now - which is an antibiotic. Hopefully the pill form will work out better. We just hav...
Continue reading ...
 

Tuesday, June 9 - 9:09 p.m.

Posted by Melanie McTaggart on Wednesday, June 10, 2009,

Today was another rough day. Just when I think Grant is going to take his medicine better - or easier - we take a turn for the worse. This morning we had to re-do the meds 4 - yes FOUR - times. He gagged and threw up 3 times in a row. I lost it and was very frustrated and ended up crying. I had been able to hold myself together pretty well until last night and then this morning I was a mess. I felt so bad for getting so upset.

Grant finally took his 4 meds this morning and keep them down, but...


Continue reading ...
 

Monday, June 8 - 5:44 p.m.

Posted by Melanie McTaggart on Monday, June 8, 2009,
Today has been a bit of a rough one. Grant has felt pretty bad all day. He got sick this morning but I can tell he wants to get sick again. He tells me he is hungry, but then does not want to eat much and then when he does, he says his tummy hurts. I feel so bad for the little guy. He is asleep now. I need to go wake him up for his meds. Hopefully he will get some much needed sleep tonight.
Continue reading ...
 

Sunday, June 7 - 3:51 p.m.

Posted by Melanie McTaggart on Sunday, June 7, 2009,
Well - Grant is finally sleeping!! The meds have finally kicked in and he is starving ALL THE TIME. I think he was up every two hours last night begging for more food. I have never seen him eat like this. And he likes to eat wierd things - like bean tacos for breakfast. This morning he had 4 pieces of toast, a bowl of cherrios, and a bag of goldfish. Then he asked me to go to Sonic to get him cheese sticks! We have decided that we are going to have to try and control what he eats a bit more. ...
Continue reading ...
 

Friday - June 5 - 2:56 p.m.

Posted by Melanie McTaggart on Friday, June 5, 2009,
Sorry I did not get to update this yesterday. It was just a busy day!

Grant has started to get sick from the Chemo. Poor little guy got sick in the car yesterday on the way to get his hair shaved. David had to swing by Children's Place to get him some new clothes so we could still make his appointment. He got his hair cut by Taylor at The Conservatory Day Spa in Kingwood. She did a great job. I can not say enough good things about the staff and ownership there. Thank you so much for everything...
Continue reading ...
 

Wednesday, June 3 - 12:26 p.m.

Posted by Melanie McTaggart on Wednesday, June 3, 2009,
Uhh - I hate this. We got into PACU so they are able to to the bone marrow biopsy and the spinal tap. They had me hold him as he fell asleep and then I had to lay him on the table. I was sooooo not prepared for that - for seeing him like that.
Continue reading ...
 

Wednesday, June 3 - 8:35 a.m.

Posted by Melanie McTaggart on Wednesday, June 3, 2009,
Sorry I did not get a chance to update this site yesterday. It was a busy and stressful day yesterday. I hope today runs a little smoother.

We had to come to clinic yesterday to get platelets. When we got here, I had to remove a bandaid that was covering Grant's port and put some cream on it. Anyway, when I started to pull off the bandage, the glue they used to close the incision where they put his port in started to pull off and the incision started to open up!! I freaked and told the nurses ...
Continue reading ...
 

Monday, June 1 - 3:16 p.m

Posted by Melanie McTaggart on Monday, June 1, 2009,
We are home and got good news. I guess things were looking up for us today because David and Claire were the 100th customers at Chickfila and got lunch for free! AND Grant received a new Portable DVD player from the hopsital which he was thrilled with. He got to watch movies during his time at Clinc which made everthing so much easier on him.

Anyway - Dr. Dreyer told me that a study, that is not published yet, came out on Friday that showed great results in kids with the the Philidelphia Chrom...
Continue reading ...
 

Monday, June 1 - 11:30 p.m.

Posted by Melanie McTaggart on Monday, June 1, 2009,

We are at TCC Clinic today. So far we have filled out paperwork and accessed Grant's port. He was a little scared, but did well. They have taken blood to run tests and now are are waiting to talk to the Dr. She said she had some good news for us, so I can't wait to hear what that is.

I'll update this as soon as we get home this afternoon.

Thanks again for everything!!!

Melanie


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