Pray for Grant

Friday - April 30 - 3:56 p.m.

Posted by Melanie McTaggart on Friday, April 30, 2010

I do not have a lot of time to update, so I apologize for making this so brief. Grant started to complain of extreme abdominal pain on Tuesday night and it stayed that way all day on Wednesday. I checked online to see what the side effects of this new drug was that he was on for the C-Diff and it stated that abdominal pain and increased diarrhea were common. So, I called Dr. Dreyer and we stopped that drug and switched him to the oral vancomicine. The pain got a lot better and the stools slowed down. In fact, he did not have a stool from 10:00 p.m. on Wednesday until around 12:00 p.m. on Thursday. Anyway, on Thursday morning Dr. Dreyer called and wanted to know how Grant was doing. I told her that he still complained some about his stomach, but I could tell he would be spiking a fever. She said to just bring him in to the triage area of the clinic so we did not get stuck going through the ER. So, I packed up once again and headed for TCH. Upon arrival, Grant had the 1st stool of the day. In is diaper were two 4-6 inch long pieces of something mixed with blood. One of them looked like skin. Dr. Dreyer said he was probably sleuthing off skin from his bowls with all the stools he had had. They checked his counts, and sure enough he had an ANC of 0 (no ability to fight an infection) and almost no platelets. She immediately started him on triple antibiotics. Soon after the antibiotics started, Grant started to chill and spiked a fever of 102.4. His heart rate dropped and they had to give him fluids. They made three attempts to get his blood pressure and heart rate under control, but it was not working. So, the called a CODE on him and he was rushed to the ICU. While here, they decided to get a CT scan on his abdomen to see what was going on with his gut. He was not allowed to eat or drink and had not had anything that whole day. Needless to say, Grant was very hungry and was begging for food. Finally around 9:00 p.m., they conducted the CT scan. David ran to get Grant food. While he was gone, we learned that Grant had typhlitis - the inflammation of the colon. Basically, Grant has gas trapped in the walls of his intestines. The only treatment for this is to give him triple IV antibiotics and to stop the consumption of all food and drink for at least two weeks. I was horrified. David was horrified. How were we going to tell Grant he still could not eat?
Somehow we pulled it together and broke the bad news.

I left the room for a moment and started to research. NOT GOOD. Almost everything I read said that basically Grant had been given a death sentence. I just could not believe that I was going to lose him to THIS after everything we have fought so hard for. David and I talked for a moment, composed ourselves and went to find a dr. to talk to. They explained that this is treatable. We just have to make it work. David headed for home at midnight and I fell asleep crying and holding Grant.

This morning the team came in to see us. They said even though the CT report looked pretty bad, Grant was actually looking and doing well - and that was a good thing for treatment. Typically, the kids that have this are in so much pain they are on a morphine drip, their stomachs are very hard and distended and hurt when you touch them, they have fevers that won't go down and an INCREASED heart rate. None of this is how Grant is presenting. So, they think we caught it early and hopefully he will be okay. The fear is that if his bowls tear, he would leak bacteria from the gut into the blood stream and die. So, that is why they won't let him eat or drink for two weeks. They have to shut the bowls down from having to work. And the antibiotics will kill any infection he could have.

Since he is clinically doing well, they have decided to move him out of the ICU to the 9th floor. We are still waiting on a room. They have just started him on IV nutrition - so hopefully that will make him feel fuller. The plan for now is we will be here for two weeks. David’s mom is coming tomorrow to help with Claire.

Okay - I am going to go back to caring for him. I'll update when I can.



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Friday - April 30 - 3:56 p.m.

Posted by Melanie McTaggart on Friday, April 30, 2010

I do not have a lot of time to update, so I apologize for making this so brief. Grant started to complain of extreme abdominal pain on Tuesday night and it stayed that way all day on Wednesday. I checked online to see what the side effects of this new drug was that he was on for the C-Diff and it stated that abdominal pain and increased diarrhea were common. So, I called Dr. Dreyer and we stopped that drug and switched him to the oral vancomicine. The pain got a lot better and the stools slowed down. In fact, he did not have a stool from 10:00 p.m. on Wednesday until around 12:00 p.m. on Thursday. Anyway, on Thursday morning Dr. Dreyer called and wanted to know how Grant was doing. I told her that he still complained some about his stomach, but I could tell he would be spiking a fever. She said to just bring him in to the triage area of the clinic so we did not get stuck going through the ER. So, I packed up once again and headed for TCH. Upon arrival, Grant had the 1st stool of the day. In is diaper were two 4-6 inch long pieces of something mixed with blood. One of them looked like skin. Dr. Dreyer said he was probably sleuthing off skin from his bowls with all the stools he had had. They checked his counts, and sure enough he had an ANC of 0 (no ability to fight an infection) and almost no platelets. She immediately started him on triple antibiotics. Soon after the antibiotics started, Grant started to chill and spiked a fever of 102.4. His heart rate dropped and they had to give him fluids. They made three attempts to get his blood pressure and heart rate under control, but it was not working. So, the called a CODE on him and he was rushed to the ICU. While here, they decided to get a CT scan on his abdomen to see what was going on with his gut. He was not allowed to eat or drink and had not had anything that whole day. Needless to say, Grant was very hungry and was begging for food. Finally around 9:00 p.m., they conducted the CT scan. David ran to get Grant food. While he was gone, we learned that Grant had typhlitis - the inflammation of the colon. Basically, Grant has gas trapped in the walls of his intestines. The only treatment for this is to give him triple IV antibiotics and to stop the consumption of all food and drink for at least two weeks. I was horrified. David was horrified. How were we going to tell Grant he still could not eat?
Somehow we pulled it together and broke the bad news.

I left the room for a moment and started to research. NOT GOOD. Almost everything I read said that basically Grant had been given a death sentence. I just could not believe that I was going to lose him to THIS after everything we have fought so hard for. David and I talked for a moment, composed ourselves and went to find a dr. to talk to. They explained that this is treatable. We just have to make it work. David headed for home at midnight and I fell asleep crying and holding Grant.

This morning the team came in to see us. They said even though the CT report looked pretty bad, Grant was actually looking and doing well - and that was a good thing for treatment. Typically, the kids that have this are in so much pain they are on a morphine drip, their stomachs are very hard and distended and hurt when you touch them, they have fevers that won't go down and an INCREASED heart rate. None of this is how Grant is presenting. So, they think we caught it early and hopefully he will be okay. The fear is that if his bowls tear, he would leak bacteria from the gut into the blood stream and die. So, that is why they won't let him eat or drink for two weeks. They have to shut the bowls down from having to work. And the antibiotics will kill any infection he could have.

Since he is clinically doing well, they have decided to move him out of the ICU to the 9th floor. We are still waiting on a room. They have just started him on IV nutrition - so hopefully that will make him feel fuller. The plan for now is we will be here for two weeks. David’s mom is coming tomorrow to help with Claire.

Okay - I am going to go back to caring for him. I'll update when I can.