Pray for Grant

Monday, Aug. 3 - 11:56 p.m.

Posted by Melanie McTaggart on Monday, August 3, 2009

I guess we were not hanging out in the dip as I thought. We were just stalled out on the tracks for a while. The car started to move again and we went further down, not up as I had hoped.

After my last post, things seemed worse last night. Grant only had a fever of 99 degrees around 10:00 and then around midnight it was only 97.5. I was so happy. I called David and woke him up to share the good news and said that we both could now get a good night sleep and not have to worry. Well, then 3:00 a.m. came. Grant woke up crying and said he was cold. I went to him and once again he was trembling. I had the nurse come in and take his temp. It was 103.0. She brought in some Tylenol for me to give him. I tried to give it to him twice and he just threw up. So, I asked the nurse to re-dose it. While I was waiting for the new pill, I decided to unwrap him from his blankets to check his diaper. Of course he had diarrhea again. As I was changing him, stool just oozed out of him. He was screaming because he was so cold and I could not cover him up until I got that mess cleaned up. Once I was done with that I proceeded to give him the Tylenol they brought to me. I asked Grant to sit up and he could not. I positioned him in the sitting position and turned to get the pill and Sprite when he just fell over face first into the mattress. I begged him to hold his head up, but he did not have the strength. This went on for several minutes and then I just lost it. The nurses came in to help me. One held his head back. One held him up in the sitting position and I put the pill into his mouth and held the cup to his Iips. I was a mess. I keep asking the nurses “Why can’t he hold his head up?” Grant was so weak he could not lift his head off his chest. The nurses were so supportive and reassured me that he was just weak from the vomiting and the fever and that it was not something worse. I laid with him just crying for about an hour and then finally fell asleep around 5:00 a.m.

The Dr.s came in the morning and also reassured me that I will see Grant as his normal self again soon. They said this is just the side effect from the chemo. I knew this was the bad one; I just was not fully prepared for how bad it would be. They are going to put him on a morphine drip to help with the pain from the mouth soars that are in his mouth, stomach and esophagus. They are also ordering him some mouthwash that has a numbing effect so he will be able to take the Gleevec. We are going to time the administration of the Gleevec around the morphine pump, the mouthwash and the anti-vomiting medication so hopefully that will help. As far as the fever - we are keeping our fingers crossed. They can’t put him on IV nutrition until his system completely clears the methotrexate. That may be a few days away still.

Since I am concerned about the weakness causing more issues with his walking, they are asking PT to come in and do some exercises with him while he is in bed - if he is up for it.

 

Wound Care came in to look at his bottom and gave me some really thick stuff to put on him. Hopefully this will help with the diaper rash. We don’t need him getting an infection on top of all of this.

God, please give me the strength to keep it together for him and get through this day.



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Monday, Aug. 3 - 11:56 p.m.

Posted by Melanie McTaggart on Monday, August 3, 2009

I guess we were not hanging out in the dip as I thought. We were just stalled out on the tracks for a while. The car started to move again and we went further down, not up as I had hoped.

After my last post, things seemed worse last night. Grant only had a fever of 99 degrees around 10:00 and then around midnight it was only 97.5. I was so happy. I called David and woke him up to share the good news and said that we both could now get a good night sleep and not have to worry. Well, then 3:00 a.m. came. Grant woke up crying and said he was cold. I went to him and once again he was trembling. I had the nurse come in and take his temp. It was 103.0. She brought in some Tylenol for me to give him. I tried to give it to him twice and he just threw up. So, I asked the nurse to re-dose it. While I was waiting for the new pill, I decided to unwrap him from his blankets to check his diaper. Of course he had diarrhea again. As I was changing him, stool just oozed out of him. He was screaming because he was so cold and I could not cover him up until I got that mess cleaned up. Once I was done with that I proceeded to give him the Tylenol they brought to me. I asked Grant to sit up and he could not. I positioned him in the sitting position and turned to get the pill and Sprite when he just fell over face first into the mattress. I begged him to hold his head up, but he did not have the strength. This went on for several minutes and then I just lost it. The nurses came in to help me. One held his head back. One held him up in the sitting position and I put the pill into his mouth and held the cup to his Iips. I was a mess. I keep asking the nurses “Why can’t he hold his head up?” Grant was so weak he could not lift his head off his chest. The nurses were so supportive and reassured me that he was just weak from the vomiting and the fever and that it was not something worse. I laid with him just crying for about an hour and then finally fell asleep around 5:00 a.m.

The Dr.s came in the morning and also reassured me that I will see Grant as his normal self again soon. They said this is just the side effect from the chemo. I knew this was the bad one; I just was not fully prepared for how bad it would be. They are going to put him on a morphine drip to help with the pain from the mouth soars that are in his mouth, stomach and esophagus. They are also ordering him some mouthwash that has a numbing effect so he will be able to take the Gleevec. We are going to time the administration of the Gleevec around the morphine pump, the mouthwash and the anti-vomiting medication so hopefully that will help. As far as the fever - we are keeping our fingers crossed. They can’t put him on IV nutrition until his system completely clears the methotrexate. That may be a few days away still.

Since I am concerned about the weakness causing more issues with his walking, they are asking PT to come in and do some exercises with him while he is in bed - if he is up for it.

 

Wound Care came in to look at his bottom and gave me some really thick stuff to put on him. Hopefully this will help with the diaper rash. We don’t need him getting an infection on top of all of this.

God, please give me the strength to keep it together for him and get through this day.