July 11 2011

July 11, 2011
David here.

Grant had a great birthday weekend. My sister and her family came in from Dallas and my parents came in from Waco.  The party was on Saturday at Kids N Action in Kingwood.  Grant had a blast playing with his friends and cousins.  He was also very happy to get so many nice presents.

After the party we went to the swimming pool where Grant spent the day playing with Claire, Melanie's dad and my nephews from Dallas. 

On Sunday we had the family-only birthday party at home.  We then went to the golf course yesterday evening and had a birthday dinner at Chachi's Mexican Restaurant in Kingwood.  The kids were thrilled to see Father T.J. eating at Chachi's.  The wait staff sang Happy Birthday to Grant and put a big sombrero on his head and whip cream on his nose.  Grant and Claire thought that was hilarious. 

Today, Grant goes in for counts.  His counts on Friday were good, though his ANC(immune system marker) had fallen.  That was not unexpected but it always makes us worry about him catching a virus or bacterial infection. 

To sum it up, it was a great weekend.  It's so hard to believe that Grant is already 5 years old and has celebrated 3 birthdays since being diagnosed in May 2009.  He spent his 3rd birthday in the hospital getting chemotherapy and his 4th and 5th at home. 

Grant's sister Claire deserves huge kudos for her behavior this weekend.  The past two years have been so difficult for her, yet she continues to amaze us with her cheerful disposition and her remarkable understanding that Grant needs special attention.  Of course, like any 6 year old,  Claire has her moments when she gets a little tired  of Grant getting so much attention.  But those moments are  few  and far between.  She really is an amazing little girl.   The job Melanie has done making Claire feel special under these difficult circumstances is just incredible. 

David
 

July 5 2011

July 5, 2011

David here.

Sorry for not posting an update in a month.  We've been very busy.

Grant and Claire had a terrific 4th of July weekend.  They were able to attend the Kingwood parade and the 4th of July celebration/fireworks last night.  Grant and Claire had a great time last night especially.

Grant's birthday is Sunday July 10, and his party will be July 9 at Kids in Action in  Kingwood. He is very excited about turning 5 and about seeing his friends and cousins at his party. 

We took a little weeke...


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June 6 2011 5:00 p.m.

June 6, 2011

David again.

Great news today!  The MRD by flow cytometry came back at zero.  This is the one that was false positive 2 weeks ago. 

  Dr. Dreyer said that they saw "hematogones" in the bone marrow which are benign cells that look identical to leukemic lymphoblasts.  They are often seen in patients whose bone marrows are recovering from chemo(like Grant's)    She thinks the most likely explanation of the false positive last time was that the pathologists were really seeing these hematogones and...


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About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Sunday, Feb. 27 , 2011 - 1:25 p.m.

February 27, 2011
Check out this video! David and I are honored that we were able to be at this amazing dinner.
Bob Schieffer on "Face the Nation" talking about TCH Cancer Center and Grant's doctor, Zoanne Dreyer
http://www.cbsnews.com/video/watch/?id=7357896n&tag=related;photovideo

 

Feb 25 2011

February 25, 2011
Grant's daddy here.

Dr Dreyer texted us today that the PCR test done at TCH came back with no detection of any Philadelphia chromosome. That is great news.  Up until now, the results have been "low level detected that can't be quantified; less than .01%" which Dr Dreyer has told us is virtually the same as "none detected."  Whether it really makes any difference or not, it feels better to hear "none detected."

Grant went back in for counts today. His hemoglobin and platelets were very good but ...
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Feb 23 10:00 am

February 23, 2011
The spinal fluid test came back clear.  2 results down; 2 pending.



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6:28 pm February 21

February 22, 2011
Dr Dreyer just texted me that the first test--flow cytometry--was MRD 0.  That means no leukemia cells detected.  Very good news.  Now we wait on result of spinal tap, FISH test and PCR test. 
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Monday February 21

February 21, 2011

Grant's daddy here.   Grant was at clinic all day today. Claire was with him because she was out of school for Presidents Day.  Claire was a very big girl today and didnt make Melanie's day even tougher. 

We found out that Grant is C Diff + yet again, which explains his recent tummy issues.  They did an abdominal x-ray which was normal.    He will need to take Vancomycin for the C Diff.  Also, his ANC dropped to 340 which is severely neutropenic.  His platelets and Hemoglobin came up a little...


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Tuesday, Feb. 16, 2010

February 16, 2011

I hope everyone had a lovely Valentine's Day. The kids, David and I enjoyed a pancake dinner at home, followed by strawberries dipped in chocolate. It was quite nice.
 
Okay for a quick family update - Grant and Claire are loving school and spending time with their friends there. David has been crazy busy at work. And I have been crazy busy too. (On top of doing Junior League and being room mom for Claire's class, I went back to work, part-time, and mostly from home. I am working for Hart Ene...


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Sunday February 6 2011

February 6, 2011
Grant's daddy here.

We were so lucky to be able to go to Omaha Nebraska Thursday through Saturday.  I had business up there and I was able to bring Melanie and the kids with me.  YaYa(my grandmother) hadnt seen Grant or Melanie since Grant was diagnosed. It meant so much to her and us that she was able to see Grant.  She and the rest of the residents of Maple Ridge assisted living center have said so many prayers for Grant.  They--especially Pastor Norm--were thrilled to see him in person.  

 W...
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Monday January 31 2011

January 31, 2011
Grant's daddy here.

Its hard to believe the year is already a month old.  Grant is doing well.  He takes 4-8 pills a day; goes to clinic 1-2 times per week for blood counts and goes for PT once a week.  He receives chemotherapy through his port once a month.   He gets spinal taps and bone marrow aspirations once every 12 weeks.  This is his routine for 12 more months, when his 33 month treatment finally ends. 

Grant's ataxia remains a problem though he has made huge improvements in his walking...
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Sunday December 26 2010

December 26, 2010
Grant's dad here.

We're sorry for not posting an update in 3 weeks. We've been very busy with the Christmas season and we just haven't taken the time to update the site.  Its our first  New Year resolution.

Grant is doing well so far in the maintenance phase.  His counts were good enough for us to go to New York City December 11-14.  Claire and Grant had a ball.  At Grant's first clinic visit after returning from New York his ANC (absolute neutrophil count) was lower than we expected. That mea...
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Sunday, Dec. 5, 2010 - 9:33 a.m.

December 5, 2010

If you have not seen the new Cancer Center Video, you have to check it out. It is very powerful! (Get a box of tissue first!)
http://www.youtube.com/watch?v=QwMhaqF07vI 

Grant has been doing really well over the past month. We are into the second week, of the second part, of the 1st cycle of Maintenance. So far so good. He has been able to handle the drugs at full dose and his counts have been right where they should be. We feel so blessed  - and a little nervous. We are wondering if it is real...


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