Pray for Grant

Saturday, Aug 1 - 5:26 p.m.

Posted by Melanie McTaggart on Saturday, August 1, 2009

As always, we go up and we come down. Let me start with some of the good news that we received today. Most of the results from Grant's bone marrow test and his spinal came back and Grant is still responding to the chemo just beautifully. His minimal residual disease is still 0 and they do not see any leukemia cells in his bone marrow nor his spine. The also cannot detect the presence of the Philadelphia Chromosome! There are two tests that we are still waiting on that are a little more sensitive that were sent to MD Anderson to review, but we expect them to send back similar results. So we are more than excited to know that he is still on track.

Okay - for the bad news. Grant has spiked a fever and feels terrible. They have added another anti-vommiting medication that seems to be working now, but it has knocked him out. The highest his fever has reached today is 102.6. So, we have bought ourselves a few more days here at the least. The other bad news is that the methotrexate levels have not gone away yet. They are sitting at 5 and the Dr.s want them to be below 0.18 before they will let us go home. Apparently this can take a while. We are optimistic though. The only other glitch that we forth see is that by the time his fever is gone and the methotrexate level is at 0.18, then his ANC will be at 0 and then they won't let us go home until it is at least 200 and trending upward - just like last time.

The thing that is most frustrating to us is the staff realized they goofed. They are still concerned about Grant's kidneys and how they process the drugs that are given to him. Apparently the normal range for your kidney function is between 0.05 - 1.2. However, that is based on an individual’s size. Grant's normal is 0.3. When we came in to get chemo the other day, Grant was at .9 - which is high for him. So, they should not have given him chemo this week, which could have further damaged his kidneys. We are lucky that they are just fine right now. They think the reason his kidney function was at .9 was because of all the antibiotics and the anti-viral medication he was on all last week and the week prior. Anyway, going forward, they will pay extra special attention to his kidney levels and make sure he can handle the drugs they are giving him. The are going to conduct a GFR test on his kidneys in a few weeks to see how well his kidneys push drugs through.

So, that is where we are today - sort of in a dip in the ride and waiting for the car to move us up the next hill...at least until the next drop.



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Saturday, Aug 1 - 5:26 p.m.

Posted by Melanie McTaggart on Saturday, August 1, 2009

As always, we go up and we come down. Let me start with some of the good news that we received today. Most of the results from Grant's bone marrow test and his spinal came back and Grant is still responding to the chemo just beautifully. His minimal residual disease is still 0 and they do not see any leukemia cells in his bone marrow nor his spine. The also cannot detect the presence of the Philadelphia Chromosome! There are two tests that we are still waiting on that are a little more sensitive that were sent to MD Anderson to review, but we expect them to send back similar results. So we are more than excited to know that he is still on track.

Okay - for the bad news. Grant has spiked a fever and feels terrible. They have added another anti-vommiting medication that seems to be working now, but it has knocked him out. The highest his fever has reached today is 102.6. So, we have bought ourselves a few more days here at the least. The other bad news is that the methotrexate levels have not gone away yet. They are sitting at 5 and the Dr.s want them to be below 0.18 before they will let us go home. Apparently this can take a while. We are optimistic though. The only other glitch that we forth see is that by the time his fever is gone and the methotrexate level is at 0.18, then his ANC will be at 0 and then they won't let us go home until it is at least 200 and trending upward - just like last time.

The thing that is most frustrating to us is the staff realized they goofed. They are still concerned about Grant's kidneys and how they process the drugs that are given to him. Apparently the normal range for your kidney function is between 0.05 - 1.2. However, that is based on an individual’s size. Grant's normal is 0.3. When we came in to get chemo the other day, Grant was at .9 - which is high for him. So, they should not have given him chemo this week, which could have further damaged his kidneys. We are lucky that they are just fine right now. They think the reason his kidney function was at .9 was because of all the antibiotics and the anti-viral medication he was on all last week and the week prior. Anyway, going forward, they will pay extra special attention to his kidney levels and make sure he can handle the drugs they are giving him. The are going to conduct a GFR test on his kidneys in a few weeks to see how well his kidneys push drugs through.

So, that is where we are today - sort of in a dip in the ride and waiting for the car to move us up the next hill...at least until the next drop.