Pray for Grant

Monday, Sept. 6, 2010 - 6:42 a.m.

Posted by Melanie McTaggart on Monday, September 6, 2010

Happy Labor Day!!!

We have had an amazing time at home the last month! So sorry for not posting sooner, but honestly, we have been super busy between starting school, going to clinic and PT at TCH, and volunteering at the school and the Junior League.

Okay, I can officially say it - we managed to stay at home for a week with Grant having an ANC of 0 and he did not spike a fever. So, we did not ever have to go back to the hospital after the last round!!!! Grant’s temp did hover around 99 and 100.5, but he never hit the 101 mark!!! YEAH!!!

During that week, Claire started kindergarten at St. Martha's. Ms. Sessions is her teacher and she LOVES her. I will post some of the pictures from the 1st week of school. The kids look so cute in their plaid!! Grant missed the 1st two weeks of school because of being in the hospital and then recovering, but was finally able to attend the 3rd week. He got up early, put on his uniform and marched himself (with a walker in hand) into his class. He was so excited to be there. The teachers said he did really well and even sent his walker home since he did not seem to need it. I was so proud of him. He had no accidents and he was able to play on the playground. I can't tell you the fear David and I felt letting him go, but he did sooooo well. We could not have been prouder. He has told us about his friends Seth, Blake and Hope. He was only able to attend for three days since there MAY have been a student across the hall that had chicken pox. We had to keep him home Wednesday and Friday, so I look forward to him being able to attend on a more consistent basis and make some more friends.

He has started PT at Texas Children's on Tuesdays and Thursdays and loves that too. His therapist, Meredith, is quite good and we are excited to have her on Grant's team. So now, when he is inpatient, he will see Danielle and when we are outpatient, he will see Meredith, but all of his PT will be through the hospital. I know it is a long drive, but honestly, I am used to it and I really want him to be with the best - and they are! Meredith conducted a test and Grant scored a bit better on a few things than I would have thought. Meredith has high expectations for Grant and we are thrilled to get moving on our "homework." We hope by the spring that Grant will be running around with much less aid from us when walking and jumping.

Well, Grant will start his 2nd to last round of hospital chemo (high dose Methotrexate) tomorrow!!! He should be in the hospital all this week and then recovering next week. We don't expect his counts to drop much with this round - especially since Dr. Dreyer is reducing his dose for the oral drugs. Last time he took them, his counts stayed too low, so per protocol, they have to adjust it. They want his ANC (ability to fight infection) to be between 500 and 1500 and his was at 160. So, hopefully, this month will go better. Again, our last round of high dose hospital chemo(Etoposide) will be Oct. 7 and then we will start the oral drugs for 14 months in November. We can't wait!!!

On the SPORTS Front….
David and I took the kids to Waco to see the Sam Houston Bearkats take on the Baylor Bears this weekend. Well, poor Sam. It was a beating. But at least Grant’s favorite college team won and he was able to see it. Even though I was pretty upset about he loss, it was fun!

David and I wanted to thank a few Houston sports figures and programs for showing a true interest in the kids at Texas Children’s. Of course at the top of the list should be Craig Biggio. He and his wife do so much for the kids that we cant even begin to thank them.  On behalf of all Sunshine Kids parents’, we think the world of the Biggio’s. Also, The Houston Dynamo players are ALWAYS willing and excited to spend their down time up on the 9th floor with the kids.  We love them and the kids are always sooooooo thrilled to see them. And a few of the Houston Astros have been great too – especially Michael Bourne and Bud Norris. Love these guys!!!  None of the parents expect any sports figures to show up and honestly, we don’t want them to unless they feel the calling to do so. But we have to share a story about Albert Pujols that is just amazing. Talk about a GREAT GUY! It is a shame that more of our children’s hometown heroes don’t feel the same about our kids as he does.

 

There is a patient on the floor that has cancer and because of his treatment, has lost his vision. He is a HUGE fan of baseball and was supposed to go to the game last week just to feel the excitement of being there. But he got sick and had to be admitted to the hospital, therefore, he missed the game. Albert Pujols heard about this and after having a bad game against our Astros, he showed up at the hospital, alone, at 11:00 p.m. and gave this boy the bat with which he hit his 400th home run. It is a moment that child will never forget! Mr. Pujols is an amazing player, but more that that, an amazing person. He managed to do this very discreetly and received no publicity.



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Monday, Sept. 6, 2010 - 6:42 a.m.

Posted by Melanie McTaggart on Monday, September 6, 2010

Happy Labor Day!!!

We have had an amazing time at home the last month! So sorry for not posting sooner, but honestly, we have been super busy between starting school, going to clinic and PT at TCH, and volunteering at the school and the Junior League.

Okay, I can officially say it - we managed to stay at home for a week with Grant having an ANC of 0 and he did not spike a fever. So, we did not ever have to go back to the hospital after the last round!!!! Grant’s temp did hover around 99 and 100.5, but he never hit the 101 mark!!! YEAH!!!

During that week, Claire started kindergarten at St. Martha's. Ms. Sessions is her teacher and she LOVES her. I will post some of the pictures from the 1st week of school. The kids look so cute in their plaid!! Grant missed the 1st two weeks of school because of being in the hospital and then recovering, but was finally able to attend the 3rd week. He got up early, put on his uniform and marched himself (with a walker in hand) into his class. He was so excited to be there. The teachers said he did really well and even sent his walker home since he did not seem to need it. I was so proud of him. He had no accidents and he was able to play on the playground. I can't tell you the fear David and I felt letting him go, but he did sooooo well. We could not have been prouder. He has told us about his friends Seth, Blake and Hope. He was only able to attend for three days since there MAY have been a student across the hall that had chicken pox. We had to keep him home Wednesday and Friday, so I look forward to him being able to attend on a more consistent basis and make some more friends.

He has started PT at Texas Children's on Tuesdays and Thursdays and loves that too. His therapist, Meredith, is quite good and we are excited to have her on Grant's team. So now, when he is inpatient, he will see Danielle and when we are outpatient, he will see Meredith, but all of his PT will be through the hospital. I know it is a long drive, but honestly, I am used to it and I really want him to be with the best - and they are! Meredith conducted a test and Grant scored a bit better on a few things than I would have thought. Meredith has high expectations for Grant and we are thrilled to get moving on our "homework." We hope by the spring that Grant will be running around with much less aid from us when walking and jumping.

Well, Grant will start his 2nd to last round of hospital chemo (high dose Methotrexate) tomorrow!!! He should be in the hospital all this week and then recovering next week. We don't expect his counts to drop much with this round - especially since Dr. Dreyer is reducing his dose for the oral drugs. Last time he took them, his counts stayed too low, so per protocol, they have to adjust it. They want his ANC (ability to fight infection) to be between 500 and 1500 and his was at 160. So, hopefully, this month will go better. Again, our last round of high dose hospital chemo(Etoposide) will be Oct. 7 and then we will start the oral drugs for 14 months in November. We can't wait!!!

On the SPORTS Front….
David and I took the kids to Waco to see the Sam Houston Bearkats take on the Baylor Bears this weekend. Well, poor Sam. It was a beating. But at least Grant’s favorite college team won and he was able to see it. Even though I was pretty upset about he loss, it was fun!

David and I wanted to thank a few Houston sports figures and programs for showing a true interest in the kids at Texas Children’s. Of course at the top of the list should be Craig Biggio. He and his wife do so much for the kids that we cant even begin to thank them.  On behalf of all Sunshine Kids parents’, we think the world of the Biggio’s. Also, The Houston Dynamo players are ALWAYS willing and excited to spend their down time up on the 9th floor with the kids.  We love them and the kids are always sooooooo thrilled to see them. And a few of the Houston Astros have been great too – especially Michael Bourne and Bud Norris. Love these guys!!!  None of the parents expect any sports figures to show up and honestly, we don’t want them to unless they feel the calling to do so. But we have to share a story about Albert Pujols that is just amazing. Talk about a GREAT GUY! It is a shame that more of our children’s hometown heroes don’t feel the same about our kids as he does.

 

There is a patient on the floor that has cancer and because of his treatment, has lost his vision. He is a HUGE fan of baseball and was supposed to go to the game last week just to feel the excitement of being there. But he got sick and had to be admitted to the hospital, therefore, he missed the game. Albert Pujols heard about this and after having a bad game against our Astros, he showed up at the hospital, alone, at 11:00 p.m. and gave this boy the bat with which he hit his 400th home run. It is a moment that child will never forget! Mr. Pujols is an amazing player, but more that that, an amazing person. He managed to do this very discreetly and received no publicity.