Pray for Grant

Thursday, April 22 - 7:30 p.m.

Posted by Melanie McTaggart on Friday, April 23, 2010

Okay - where did I leave off? Grant was throwing up once a day through Saturday. We did get admitted on Monday and started Chemo. This is the first time since last Aug that Grant got a full dose of Methotrexate in his spine. So, needless to say, we have been a little nervous about that.

On Monday, we discovered that Grant's liver enzymes were elevated. That is usually not a big deal, but they were more concerned since we were further out from that last hospital chemo and it should not have been that high. Since they are so high, we have had to STOP THE GLEEVEC (the one drug saving Grant's life) for 14 days! David and I really do not want to do this, but can't harm his liver further, so we agreed to stop it. Well, Grant has not acted any better since we have checked in. He is very tired and just not himself. So on Wednesday this week we decided to check the liver again. The liver enzymes have gone up even more. Then this morning, they checked them again and AGAIN, they have gone up - not down. So they performed a liver ultrasound and it came back normal.

David and I feel like this (the throwing up last week, the lack of energy, and the elevated liver enzymes) is because of the new drug he started on March 31 called 6MP. The Drs do not agree, but everything we pull up about the side effects of that drug say that is caused all of the symptoms he has been having.

Tonight, since he is still not perking up and not eating much, they have decided to run a TON of tests on him. Since we have checked in, Grant's blood pressure and beats per minute are lower than usual. So, it could be that the liver enzyme elevation could be related to a heart issue. So, tonight they will run an EKG. Tomorrow they are planning on conducting an Echocardiogram of his heart, they are checking his ammonia levels, his clotting ability, his spinal methotrexate levels, a gene mutation that he could have that may cause issues with the 6MP, an MRI of his brain, and a CPK to see if he is having issues with his muscles doing what they should. They are also going to put him on Prevacid to help with his stomach issues in case it is just that that is causing him to act so tired and uninterested. Oh - And he has not had a bowel movement since last Sunday. So....

On a lighter note, we have had a very busy time here at the hospital. On Tuesday we learned that the cancer center was putting together a new video for promotional purposes. They asked if we would be okay being interviewed for it and met with the film team. On Wednesday, the film crew showed up at 8:30 a.m. and followed us around and filmed us until around 1:00 p.m. They took film of Grant riding his bike, doing puzzles and looking at fish. They took film of various staff coming it to see Grant including Dr. Dreyer, our social worker, and the childlife specialist. They interviewed Claire and then they interviewed us. We felt very honored to be apart of this.

Today, after the liver ultrasound, my mother-in-law came to stay with Grant so that David and I could attend the Candellighters Luncheon at the River Oaks Country Club. It was a first-class event that featured Rudy Gulliani as the keynote speaker. David and I were very touched to be there and to hear the stories of families who have also had to deal with a child with cancer. They gave David and I a lovely framed picture of the luncheon invitation that featured Grant. It was an emotionally draining event - but one that we felt very blessed to be apart of.

Well, I have laundry to go get from upstairs on 16 and I have promised Grant I would snuggle with him. I will update more in the morning.



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Thursday, April 22 - 7:30 p.m.

Posted by Melanie McTaggart on Friday, April 23, 2010

Okay - where did I leave off? Grant was throwing up once a day through Saturday. We did get admitted on Monday and started Chemo. This is the first time since last Aug that Grant got a full dose of Methotrexate in his spine. So, needless to say, we have been a little nervous about that.

On Monday, we discovered that Grant's liver enzymes were elevated. That is usually not a big deal, but they were more concerned since we were further out from that last hospital chemo and it should not have been that high. Since they are so high, we have had to STOP THE GLEEVEC (the one drug saving Grant's life) for 14 days! David and I really do not want to do this, but can't harm his liver further, so we agreed to stop it. Well, Grant has not acted any better since we have checked in. He is very tired and just not himself. So on Wednesday this week we decided to check the liver again. The liver enzymes have gone up even more. Then this morning, they checked them again and AGAIN, they have gone up - not down. So they performed a liver ultrasound and it came back normal.

David and I feel like this (the throwing up last week, the lack of energy, and the elevated liver enzymes) is because of the new drug he started on March 31 called 6MP. The Drs do not agree, but everything we pull up about the side effects of that drug say that is caused all of the symptoms he has been having.

Tonight, since he is still not perking up and not eating much, they have decided to run a TON of tests on him. Since we have checked in, Grant's blood pressure and beats per minute are lower than usual. So, it could be that the liver enzyme elevation could be related to a heart issue. So, tonight they will run an EKG. Tomorrow they are planning on conducting an Echocardiogram of his heart, they are checking his ammonia levels, his clotting ability, his spinal methotrexate levels, a gene mutation that he could have that may cause issues with the 6MP, an MRI of his brain, and a CPK to see if he is having issues with his muscles doing what they should. They are also going to put him on Prevacid to help with his stomach issues in case it is just that that is causing him to act so tired and uninterested. Oh - And he has not had a bowel movement since last Sunday. So....

On a lighter note, we have had a very busy time here at the hospital. On Tuesday we learned that the cancer center was putting together a new video for promotional purposes. They asked if we would be okay being interviewed for it and met with the film team. On Wednesday, the film crew showed up at 8:30 a.m. and followed us around and filmed us until around 1:00 p.m. They took film of Grant riding his bike, doing puzzles and looking at fish. They took film of various staff coming it to see Grant including Dr. Dreyer, our social worker, and the childlife specialist. They interviewed Claire and then they interviewed us. We felt very honored to be apart of this.

Today, after the liver ultrasound, my mother-in-law came to stay with Grant so that David and I could attend the Candellighters Luncheon at the River Oaks Country Club. It was a first-class event that featured Rudy Gulliani as the keynote speaker. David and I were very touched to be there and to hear the stories of families who have also had to deal with a child with cancer. They gave David and I a lovely framed picture of the luncheon invitation that featured Grant. It was an emotionally draining event - but one that we felt very blessed to be apart of.

Well, I have laundry to go get from upstairs on 16 and I have promised Grant I would snuggle with him. I will update more in the morning.