Pray for Grant

Thursday, Aug 6 - 2:47 p.m.

Posted by Melanie McTaggart on Thursday, August 6, 2009

I just counted and out of the 69 days since Grant was diagnosed, he has only been home for 22 of them. Treatment is terrible. At least the side effects are. I am really ready to be at home for a while. I guess that won’t be happening anytime soon. We have 3 scheduled hospital stays between now and mid Sept and they start in a week and a half. UHHH!

After getting moved down here to the critical care unit, Grant had another episode of not being "with it" and had tremors. The Drs got to see it and agreed that we needed to do some further studies. So they ran an EEG on his brain waves and also ran a CT scan. Thank God the CT scan was fine. The EEG showed some “slowing of the brain waves.” That could mean he had a seizure or would be consistent with the medications he has been on. They do not think he had a seizure, but they could not rule it out either. 
 

His stomach is still very bloated. Actually his whole body is. They did an ultrasound on his belly to see if he had inflammation of the colon. Although they could not see his colon on the image, they did see a lot of fluid. So today, after his chemistry levels and the calcium and magnesium levels were fine, they agreed to give him Lasix – a drug that will cause him to urinate out some of the extra fluid. I really hope this helps because he is so bloated that he is having trouble getting air in his lungs. The only problem with the Lasix is that he will also urinate out some of the calcium and magnesium – so they are monitoring his chemistry levels closely. If those slip, they will give him more of those via IV.
 

For the numbers: The ANC is still 0, but the white count went up, as did the red blood count and the platelets. Also, his monocyte percentage was 4.3. This is a good sign that we will start to see his numbers moving upward. The sooner his ANC comes back, the better. The soars in his mouth will go away with a normal ANC. After the soars go away, then he will want to talk and eat. After he eats, we will get to go home.

They do think he is stable enough to move back up to the 9th floor. We are just waiting on a room now. I miss my new extended family up there and can’t wait to get back up to them.



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Thursday, Aug 6 - 2:47 p.m.

Posted by Melanie McTaggart on Thursday, August 6, 2009

I just counted and out of the 69 days since Grant was diagnosed, he has only been home for 22 of them. Treatment is terrible. At least the side effects are. I am really ready to be at home for a while. I guess that won’t be happening anytime soon. We have 3 scheduled hospital stays between now and mid Sept and they start in a week and a half. UHHH!

After getting moved down here to the critical care unit, Grant had another episode of not being "with it" and had tremors. The Drs got to see it and agreed that we needed to do some further studies. So they ran an EEG on his brain waves and also ran a CT scan. Thank God the CT scan was fine. The EEG showed some “slowing of the brain waves.” That could mean he had a seizure or would be consistent with the medications he has been on. They do not think he had a seizure, but they could not rule it out either. 
 

His stomach is still very bloated. Actually his whole body is. They did an ultrasound on his belly to see if he had inflammation of the colon. Although they could not see his colon on the image, they did see a lot of fluid. So today, after his chemistry levels and the calcium and magnesium levels were fine, they agreed to give him Lasix – a drug that will cause him to urinate out some of the extra fluid. I really hope this helps because he is so bloated that he is having trouble getting air in his lungs. The only problem with the Lasix is that he will also urinate out some of the calcium and magnesium – so they are monitoring his chemistry levels closely. If those slip, they will give him more of those via IV.
 

For the numbers: The ANC is still 0, but the white count went up, as did the red blood count and the platelets. Also, his monocyte percentage was 4.3. This is a good sign that we will start to see his numbers moving upward. The sooner his ANC comes back, the better. The soars in his mouth will go away with a normal ANC. After the soars go away, then he will want to talk and eat. After he eats, we will get to go home.

They do think he is stable enough to move back up to the 9th floor. We are just waiting on a room now. I miss my new extended family up there and can’t wait to get back up to them.