Pray for Grant

Tuesday, April 27 - 8:19 a.m.

Posted by Melanie McTaggart on Tuesday, April 27, 2010

I think we have finally lost our minds. Last night at 8:00 I asked the nurse to see if any of the stool cultures had come back, knowing full well that it would be too soon to show anything. Grant must have gone through no less than 20 diapers yesterday and I was really feeling desperate for an answer. Our nurse was lovely enough to look for me and guess what! The C-Diff stool results were listed as "FINAL." She quickly opened it and sure enough - Grant has C-Diff!!! I cheered and danced in the halls. Then I called David and his response as "GREAT!!!" Then I e-mailed Dr. Dreyer. and she responded, "Hooray - I think!!!"

Like I said, we have lost our minds. Anyone that knows what C-Diff is does not cheer about it. It is not fun for those that have it, the people who treat it, or the parents who have to smell it. Look it up. There is actually a support group for people with it. And here we are cheering. We are sooooooo thrilled to have a diagnosis that CAN AT LEAST BE TREATED!!! We have had this before and know what we are dealing with so we are thankful for that.

For those that don't know - C-diff is a "bad" bacterium that grows in all of our intestines. The only time it gets out of control is when it can overgrow and kill off all the "good" bacteria and take over your system. That is what it has done to Grant. Why you ask? We don't know for sure. Originally when he had it the first time, it was because all the anti-biotics he was on killed off all the good bacteria allowing it to grow, but he has not been on anything like that this year. So, who knows why it took over this time. C-Diff causes bleeding in the intestines that shows up in the VERY VERY horrible smelling mucusy and liquid yellow stool. It is accompanied by being bloated, stomach cramps, and abdominal pain - all of which never go away. No wonder Grant has felt so bad for the past month!!!

So what is the plan now? Not sure. He did get a new anti-biotic called Alinia last night that is used to treat C-diff and other stomach issues. I am not sure it is the best choice for him, so I am sure we will discuss this with the Docs when they come by this morning. Last time he was on several rounds of oral vancomiacine. They may be scared to use that again since you can develop a very deadly vancomiacine resistant strand of C-diff. So, we will see. But at least we know what is wrong.

Grant is eating great this morning and is in good spirits. I hope continues to do well this week. I don't think they will let us go until his ANC comes back up. He is at .11 this morning and will likely be at 0 tomorrow, but back up by the weekend. So I hope we get to get out of here with a healthier kid be the weeks end.

Thank you so much for all the prayers and the sweet messages so many of you have sent me these past few days. I don't know what we would do without such a great support group holding us up.

I'll keep you all posted on what the docs want to do next.

PS – Sorry for the TMI in this blog!!! J



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Tuesday, April 27 - 8:19 a.m.

Posted by Melanie McTaggart on Tuesday, April 27, 2010

I think we have finally lost our minds. Last night at 8:00 I asked the nurse to see if any of the stool cultures had come back, knowing full well that it would be too soon to show anything. Grant must have gone through no less than 20 diapers yesterday and I was really feeling desperate for an answer. Our nurse was lovely enough to look for me and guess what! The C-Diff stool results were listed as "FINAL." She quickly opened it and sure enough - Grant has C-Diff!!! I cheered and danced in the halls. Then I called David and his response as "GREAT!!!" Then I e-mailed Dr. Dreyer. and she responded, "Hooray - I think!!!"

Like I said, we have lost our minds. Anyone that knows what C-Diff is does not cheer about it. It is not fun for those that have it, the people who treat it, or the parents who have to smell it. Look it up. There is actually a support group for people with it. And here we are cheering. We are sooooooo thrilled to have a diagnosis that CAN AT LEAST BE TREATED!!! We have had this before and know what we are dealing with so we are thankful for that.

For those that don't know - C-diff is a "bad" bacterium that grows in all of our intestines. The only time it gets out of control is when it can overgrow and kill off all the "good" bacteria and take over your system. That is what it has done to Grant. Why you ask? We don't know for sure. Originally when he had it the first time, it was because all the anti-biotics he was on killed off all the good bacteria allowing it to grow, but he has not been on anything like that this year. So, who knows why it took over this time. C-Diff causes bleeding in the intestines that shows up in the VERY VERY horrible smelling mucusy and liquid yellow stool. It is accompanied by being bloated, stomach cramps, and abdominal pain - all of which never go away. No wonder Grant has felt so bad for the past month!!!

So what is the plan now? Not sure. He did get a new anti-biotic called Alinia last night that is used to treat C-diff and other stomach issues. I am not sure it is the best choice for him, so I am sure we will discuss this with the Docs when they come by this morning. Last time he was on several rounds of oral vancomiacine. They may be scared to use that again since you can develop a very deadly vancomiacine resistant strand of C-diff. So, we will see. But at least we know what is wrong.

Grant is eating great this morning and is in good spirits. I hope continues to do well this week. I don't think they will let us go until his ANC comes back up. He is at .11 this morning and will likely be at 0 tomorrow, but back up by the weekend. So I hope we get to get out of here with a healthier kid be the weeks end.

Thank you so much for all the prayers and the sweet messages so many of you have sent me these past few days. I don't know what we would do without such a great support group holding us up.

I'll keep you all posted on what the docs want to do next.

PS – Sorry for the TMI in this blog!!! J