Pray for Grant

Tuesday - Aug 11 - 5:42 a.m.

Posted by Melanie McTaggart on Tuesday, August 11, 2009

Sorry for not updating this yesterday. There was not much to report until late in the day and then I was too tired to update this last night.

Grant had a better day yesterday. He laughed and smiled noticeably more. He still seemed out of it, but at least he showed us that we could make him happy. The toughest part of the day was having to give him the Gleevec. His throat hurts and he does not want to swallow, but he HAS to swallow these 2 small pills everyday. It is terrible. He keeps spitting them out and I have to put my fingers in his mouth and try to force the pills down the back of his throat. He has learned to bite me. Yesterday he bit me so hard, the nurses had to get me ice. I hope today goes a little better. I feel so bad for him, but his medicine is not one we are willing to skip. It is saving his life and he has no choice but to take it. The Gleevec is what is getting rid of the terrible Philadelphia chromosome.

Tiffany came to visit and we just hung out and watched a movie. It was good to just relax and hang out without having to talk about Grant's cancer. When Grant woke up from his 3-hour nap, he said his head hurt. It was the first time he told me what hurt and actually pointed to he back of his head. We told the Drs and they decided to run another MRI. That is scheduled for today at noon.

After that, Grant decided he was tired of being in bed and wanted to leave the room. It was so good to see him - even though he was still just staring and kind of out of it - want to go do something. We took him to the playroom for some PT and he did okay. He can't support his own weight nor can he use his hands much. He had difficulty holding things. He also has difficulty holding his head up or sitting up without falling. I know that sounds terrible, but this is actually better than it has been. For days - almost a week - Grant has not moved. I mean not at all. He would not move his legs or arms in bed. So the fact that he was willing to try and move them was huge.

After PT, we found a wagon and he LOVED it. We put some pillows in it and wheeled him around the floor. He just laid there staring, but he knew what was going on. I would say, "Okay, lets go back to the room," and he would start crying and then would point in a direction he wanted me to go. If I went the wrong way, he got mad. So I know he understands more than he looks like he can. He will also respond to commands to do things. He may not do them, but he responds. I ask him to point at things and he can. If I ask him to do something he does not want to do, he cries and shakes his head no.

Anyway, Grant liked his wagon so much that David went out and bought him his own to have up here. He was thrilled and keep pointing at it as I put it together. He wanted to sit with me as I put the wheels on. I could tell he wanted to help. He likes to help me with projects like this normally.

Okay, for the numbers. We waited ALL day and never received an ANC number. Then early this morning the nurse ran the CBC and it shows that Grant now has an ANC of .01. It may not be much, but we will take it! It also shows that he has a TON of monocytes. So, tomorrow we can expect a huge jump in his ANC number. As soon as this number goes up, the sooner his pain will go away. I can't wait!

So, we will see how the day progresses and I promise to update again tonight. I am going to go home and see Claire tonight and spend some time with her tomorrow. My dad is going to come up here to be with Grant.

Keep up the prayers!!  And thank you so much for all your support!



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Tuesday - Aug 11 - 5:42 a.m.

Posted by Melanie McTaggart on Tuesday, August 11, 2009

Sorry for not updating this yesterday. There was not much to report until late in the day and then I was too tired to update this last night.

Grant had a better day yesterday. He laughed and smiled noticeably more. He still seemed out of it, but at least he showed us that we could make him happy. The toughest part of the day was having to give him the Gleevec. His throat hurts and he does not want to swallow, but he HAS to swallow these 2 small pills everyday. It is terrible. He keeps spitting them out and I have to put my fingers in his mouth and try to force the pills down the back of his throat. He has learned to bite me. Yesterday he bit me so hard, the nurses had to get me ice. I hope today goes a little better. I feel so bad for him, but his medicine is not one we are willing to skip. It is saving his life and he has no choice but to take it. The Gleevec is what is getting rid of the terrible Philadelphia chromosome.

Tiffany came to visit and we just hung out and watched a movie. It was good to just relax and hang out without having to talk about Grant's cancer. When Grant woke up from his 3-hour nap, he said his head hurt. It was the first time he told me what hurt and actually pointed to he back of his head. We told the Drs and they decided to run another MRI. That is scheduled for today at noon.

After that, Grant decided he was tired of being in bed and wanted to leave the room. It was so good to see him - even though he was still just staring and kind of out of it - want to go do something. We took him to the playroom for some PT and he did okay. He can't support his own weight nor can he use his hands much. He had difficulty holding things. He also has difficulty holding his head up or sitting up without falling. I know that sounds terrible, but this is actually better than it has been. For days - almost a week - Grant has not moved. I mean not at all. He would not move his legs or arms in bed. So the fact that he was willing to try and move them was huge.

After PT, we found a wagon and he LOVED it. We put some pillows in it and wheeled him around the floor. He just laid there staring, but he knew what was going on. I would say, "Okay, lets go back to the room," and he would start crying and then would point in a direction he wanted me to go. If I went the wrong way, he got mad. So I know he understands more than he looks like he can. He will also respond to commands to do things. He may not do them, but he responds. I ask him to point at things and he can. If I ask him to do something he does not want to do, he cries and shakes his head no.

Anyway, Grant liked his wagon so much that David went out and bought him his own to have up here. He was thrilled and keep pointing at it as I put it together. He wanted to sit with me as I put the wheels on. I could tell he wanted to help. He likes to help me with projects like this normally.

Okay, for the numbers. We waited ALL day and never received an ANC number. Then early this morning the nurse ran the CBC and it shows that Grant now has an ANC of .01. It may not be much, but we will take it! It also shows that he has a TON of monocytes. So, tomorrow we can expect a huge jump in his ANC number. As soon as this number goes up, the sooner his pain will go away. I can't wait!

So, we will see how the day progresses and I promise to update again tonight. I am going to go home and see Claire tonight and spend some time with her tomorrow. My dad is going to come up here to be with Grant.

Keep up the prayers!!  And thank you so much for all your support!