Pray for Grant

Tuesday, July 21 - 9:09 p.m.

Posted by Melanie McTaggart on Wednesday, July 22, 2009

Today was a better day. Grant's ANC is now at 20 and he was in a much better mood for most of the day. The Dr's put us in lock down in his room because they thought that he may have a virus. As soon as those results come back negative, we can leave the room again.  Hopefully that will happen tomorrow. His has fever stayed away!!! That is greatest news. We did not have to start the anti-fungal medications! Thank the Lord!!!

We are still scheduled to be in here through at least the end of the week. They want Grant's ANC to be about 200 and trending upward before they will release us. Because of his numbers being so low still, then have decided to move his spinal chemo that was scheduled for tomorrow till Thursday or Friday. If his ANC is 750 by next Wednesday, we will move forward with the next round of hospital chemo. The next one is supposed to be terrible. They told us to expect to be here a lot next month because of fevers.

Even though we were stuck in his room all day, we managed to have some fun. I asked the Drs if we could unplug him from the IV pull for a few hours a day so he could have some freedom moving around. They agreed. So, I took some tape and created a few bases in the room. Grant and I spent most of the afternoon playing baseball and taking turns at bat. He loved every second of it.

The hardest part of this whole process is being away from home so much. I did not fully understand how much we would be away. I had a hard time with this today. Poor David only gets to come up to the hospital for about 30 minutes during lunch and that is it everyday.Today, his 30 minutes was spent listening to Grant scream becuase I was trying to get him to eat. It was aweful. He and I just don't get much time to spend with each other much less just talk. He has to drive home everynight to get Claire and we live too far  for David and Claire to come back here to see us. In the last 15 days, I have only sleep in my bed 4 nights. And of those 4, I have only seen David at home 2 nights. It is really tough on Claire too. I talk to her on the phone for only a few minutes a day. She is busy playing with friends, going to school and spending time with one of our two baby sitters. Even though she is busy, she misses me. She tells David every morning that she misses me and has the sitter call me  a couple times a day. I feel so terrible being torn between being here with Grant and wanting to be home with David and Claire. I just want us to go home and feel normal, even for a few days, before we check back in next week.

Please pray that we all have the strength to get through this, and of course, for Grant's cure!



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Tuesday, July 21 - 9:09 p.m.

Posted by Melanie McTaggart on Wednesday, July 22, 2009

Today was a better day. Grant's ANC is now at 20 and he was in a much better mood for most of the day. The Dr's put us in lock down in his room because they thought that he may have a virus. As soon as those results come back negative, we can leave the room again.  Hopefully that will happen tomorrow. His has fever stayed away!!! That is greatest news. We did not have to start the anti-fungal medications! Thank the Lord!!!

We are still scheduled to be in here through at least the end of the week. They want Grant's ANC to be about 200 and trending upward before they will release us. Because of his numbers being so low still, then have decided to move his spinal chemo that was scheduled for tomorrow till Thursday or Friday. If his ANC is 750 by next Wednesday, we will move forward with the next round of hospital chemo. The next one is supposed to be terrible. They told us to expect to be here a lot next month because of fevers.

Even though we were stuck in his room all day, we managed to have some fun. I asked the Drs if we could unplug him from the IV pull for a few hours a day so he could have some freedom moving around. They agreed. So, I took some tape and created a few bases in the room. Grant and I spent most of the afternoon playing baseball and taking turns at bat. He loved every second of it.

The hardest part of this whole process is being away from home so much. I did not fully understand how much we would be away. I had a hard time with this today. Poor David only gets to come up to the hospital for about 30 minutes during lunch and that is it everyday.Today, his 30 minutes was spent listening to Grant scream becuase I was trying to get him to eat. It was aweful. He and I just don't get much time to spend with each other much less just talk. He has to drive home everynight to get Claire and we live too far  for David and Claire to come back here to see us. In the last 15 days, I have only sleep in my bed 4 nights. And of those 4, I have only seen David at home 2 nights. It is really tough on Claire too. I talk to her on the phone for only a few minutes a day. She is busy playing with friends, going to school and spending time with one of our two baby sitters. Even though she is busy, she misses me. She tells David every morning that she misses me and has the sitter call me  a couple times a day. I feel so terrible being torn between being here with Grant and wanting to be home with David and Claire. I just want us to go home and feel normal, even for a few days, before we check back in next week.

Please pray that we all have the strength to get through this, and of course, for Grant's cure!