Pray for Grant

Tuesday, Sept. 28, 2010 - 8:00 p.m.

Posted by Melanie McTaggart on Wednesday, September 29, 2010

So sorry I have not posted all month. After Grant got admitted, then discharged, it has been crazy busy. I have not had a second to myself, if I did, I was exhausted and just did not have it in me to update. Soooo sorry!!!

Grant did well with his last dose of High Dose Methotrexate. He actually was able to receive the entire bag for the first time since last Aug. A week after he was discharge we went in for counts and to our surprise, his counts dropped a lot. He was covered in mouth sores again. He had one in his nose that kept bleeding on and off and he complained about his stomach hurting. He had to get a platelet transfusion because he was COVERED in bruises. And, on top of all of that, he ended up with C-diff again - the nasty bacterial infection that put him in the ICU once before. I had a feeling he had it again and asked for a stool culture be taken. Sure enough. So, he has just completed a round of antibiotics and managed to stay out of the hospital with it. We did spend a couple of days in the Triage area of clinic getting hydrated, but at least he did not get admitted.  Because his counts were so low, and because of the C-diff, they had to hold his oral chemo pills for about 2 weeks. Finally, last Wednesday, his counts came back up and we were able to restart them.

Last Wednesday and Friday, and this Monday, Grant got to go to school. He had a great time seeing his friends and trying to get back into a routine. Today I took him back in for counts to see how he was handling the oral chemo. Well, not well. His ANC (ability to fight infection) is down to only 170. Normal is 1500, so he is at high risk for developing an infection again. Anyway, we have to stop the oral meds again and he can't go to school anymore this week. I feel so bad for him. I thought the oral meds that he will be taking EVERYDAY in maintenance would be easier on him. Apparently not. He was only on them one week and at a 50% dose reduction and still his bone marrow is wiped out.

So, we will go back in on Friday for counts. I may try to get him in there on Thursday for counts with the hope they are back up. We have an obligation to be interviewed for the ABC show "Mirror Mirror" that afternoon before a fitting for a fashion show that Grant and our family is scheduled to be in next Tuesday. (The Fashion show is for the Champions Luncheon in which Grant is an honoree. The luncheon is a fundraiser for the Texas Children’s Cancer Center, and since he is the honoree, our family has been asked to "model" in the fashion show during that luncheon.) Anyway. I pray that his counts are up, which I doubt, by the weekend. And if not by then, then I pray they are up by next Wednesday. He is supposed to check in next Wednesday, Oct. 6, for his LAST ROUND OF HOSPITAL CHEMO!!!! We can't wait to end this part of our cancer journey!!!

If he does make counts by Oct. 6, and is admitted that day, then we are planning to celebrate on Sunday, Oct. 10, at 3:30 p.m. on the 9th floor of the West Tower of TCH with our friends and family. Grant's cancer buddy, Presley, who has Grant's same diagnosis and started the journey a week before us will be in the hospital at that time having her last round of chemo too! We are so proud of our kids for the fight they have put up!

Well, please pray with me. And I PROMISE to update on Friday when I know more. Thanks for your patience with me for not updating this as much as I should have.

Oh – and if you have not had a chance to do so, please visit our Light the Night Page for the Leukemia/Lymphoma Society Fundraising Walk. We would love you to join us on Oct. 24th for the walk, and if you can’t, please consider a small tax-deductible donation!!
http://pages.lightthenight.org/txg/Woodland10/MMcTaggart



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Tuesday, Sept. 28, 2010 - 8:00 p.m.

Posted by Melanie McTaggart on Wednesday, September 29, 2010

So sorry I have not posted all month. After Grant got admitted, then discharged, it has been crazy busy. I have not had a second to myself, if I did, I was exhausted and just did not have it in me to update. Soooo sorry!!!

Grant did well with his last dose of High Dose Methotrexate. He actually was able to receive the entire bag for the first time since last Aug. A week after he was discharge we went in for counts and to our surprise, his counts dropped a lot. He was covered in mouth sores again. He had one in his nose that kept bleeding on and off and he complained about his stomach hurting. He had to get a platelet transfusion because he was COVERED in bruises. And, on top of all of that, he ended up with C-diff again - the nasty bacterial infection that put him in the ICU once before. I had a feeling he had it again and asked for a stool culture be taken. Sure enough. So, he has just completed a round of antibiotics and managed to stay out of the hospital with it. We did spend a couple of days in the Triage area of clinic getting hydrated, but at least he did not get admitted.  Because his counts were so low, and because of the C-diff, they had to hold his oral chemo pills for about 2 weeks. Finally, last Wednesday, his counts came back up and we were able to restart them.

Last Wednesday and Friday, and this Monday, Grant got to go to school. He had a great time seeing his friends and trying to get back into a routine. Today I took him back in for counts to see how he was handling the oral chemo. Well, not well. His ANC (ability to fight infection) is down to only 170. Normal is 1500, so he is at high risk for developing an infection again. Anyway, we have to stop the oral meds again and he can't go to school anymore this week. I feel so bad for him. I thought the oral meds that he will be taking EVERYDAY in maintenance would be easier on him. Apparently not. He was only on them one week and at a 50% dose reduction and still his bone marrow is wiped out.

So, we will go back in on Friday for counts. I may try to get him in there on Thursday for counts with the hope they are back up. We have an obligation to be interviewed for the ABC show "Mirror Mirror" that afternoon before a fitting for a fashion show that Grant and our family is scheduled to be in next Tuesday. (The Fashion show is for the Champions Luncheon in which Grant is an honoree. The luncheon is a fundraiser for the Texas Children’s Cancer Center, and since he is the honoree, our family has been asked to "model" in the fashion show during that luncheon.) Anyway. I pray that his counts are up, which I doubt, by the weekend. And if not by then, then I pray they are up by next Wednesday. He is supposed to check in next Wednesday, Oct. 6, for his LAST ROUND OF HOSPITAL CHEMO!!!! We can't wait to end this part of our cancer journey!!!

If he does make counts by Oct. 6, and is admitted that day, then we are planning to celebrate on Sunday, Oct. 10, at 3:30 p.m. on the 9th floor of the West Tower of TCH with our friends and family. Grant's cancer buddy, Presley, who has Grant's same diagnosis and started the journey a week before us will be in the hospital at that time having her last round of chemo too! We are so proud of our kids for the fight they have put up!

Well, please pray with me. And I PROMISE to update on Friday when I know more. Thanks for your patience with me for not updating this as much as I should have.

Oh – and if you have not had a chance to do so, please visit our Light the Night Page for the Leukemia/Lymphoma Society Fundraising Walk. We would love you to join us on Oct. 24th for the walk, and if you can’t, please consider a small tax-deductible donation!!
http://pages.lightthenight.org/txg/Woodland10/MMcTaggart