Pray for Grant

Wednesday August 12-11:30 am

Posted by Melanie McTaggart on Wednesday, August 12, 2009

For a change, Grant's Daddy is writing the update today. 

Grant underwent an MRI of the brain yesterday, which showed only minimal changes that the doctors expect to see while a child is undergoing chemotherapy. Dr Dreyer told me that Grant's MRI actually looked better than average for someone undergoing chemotherapy.  She and the neurology team fully expect Grant's neurological symptoms--weakness, lack of alertness and lack of balance--to fully resolve. 

Dr Dreyer isnt sure exactly what caused the neurological funk Grant is  in, but she thinks it is probably due to a combination of the high dose methotrexate(which cleared his system slowly due to the kidney issue), high dose Ara C, his low calcium and magnesium levels last week, and  the intrathecal(spinal) chemo he received.  They will likely tweak Grant's chemotherapy regimen in the future, but neither Dr Dreyer nor the neurology team think this episode should dramatically affect the treatment he is scheduled to receive.

Grant is improving clinically, slowly but surely. He is smiling much more and speaking at least a few words. It  still sounds like it may be painful in his throat when he talks.   He now wants to be out of his room all the time. Today, Melanie's dad(Grant's Papa) is spending the day with Grant.  Papa is pulling Grant around the floor in his wagon, over and over and over.  Grant actually chewed and swallowed 3 Skittles today.  That is huge news, as it is the first solid food he has eaten in about 12 days.  His fine motor skills are improving as well. He is grabbing things with his hands now.

We dont know when we will get to go home.  Before that can happen his ANC needs to be at least 200(that should happen in the next few days) and  he needs to be off IV pain meds(that has pretty much already happened). Most importantly, he needs to improve clinically before they will be comfortable letting him go home.  He has improved quite a bit in the last 2 days, and we hope that continues.

I hope everyone has enjoyed my Joe Friday, "Just the Facts" update.   I'm sure you will be glad when my better and more expressive half resumes her role as update writer.



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Wednesday August 12-11:30 am

Posted by Melanie McTaggart on Wednesday, August 12, 2009

For a change, Grant's Daddy is writing the update today. 

Grant underwent an MRI of the brain yesterday, which showed only minimal changes that the doctors expect to see while a child is undergoing chemotherapy. Dr Dreyer told me that Grant's MRI actually looked better than average for someone undergoing chemotherapy.  She and the neurology team fully expect Grant's neurological symptoms--weakness, lack of alertness and lack of balance--to fully resolve. 

Dr Dreyer isnt sure exactly what caused the neurological funk Grant is  in, but she thinks it is probably due to a combination of the high dose methotrexate(which cleared his system slowly due to the kidney issue), high dose Ara C, his low calcium and magnesium levels last week, and  the intrathecal(spinal) chemo he received.  They will likely tweak Grant's chemotherapy regimen in the future, but neither Dr Dreyer nor the neurology team think this episode should dramatically affect the treatment he is scheduled to receive.

Grant is improving clinically, slowly but surely. He is smiling much more and speaking at least a few words. It  still sounds like it may be painful in his throat when he talks.   He now wants to be out of his room all the time. Today, Melanie's dad(Grant's Papa) is spending the day with Grant.  Papa is pulling Grant around the floor in his wagon, over and over and over.  Grant actually chewed and swallowed 3 Skittles today.  That is huge news, as it is the first solid food he has eaten in about 12 days.  His fine motor skills are improving as well. He is grabbing things with his hands now.

We dont know when we will get to go home.  Before that can happen his ANC needs to be at least 200(that should happen in the next few days) and  he needs to be off IV pain meds(that has pretty much already happened). Most importantly, he needs to improve clinically before they will be comfortable letting him go home.  He has improved quite a bit in the last 2 days, and we hope that continues.

I hope everyone has enjoyed my Joe Friday, "Just the Facts" update.   I'm sure you will be glad when my better and more expressive half resumes her role as update writer.