Pray for Grant

Wednesday, June 24 - 11:40 a.m.

Posted by Melanie McTaggart on Wednesday, June 24, 2009
Okay. Hard day for me. We are up at clinic today and Grant is getting his bone marrow biopsy and his spinal tap. The results of these tests will tell us in the next 3-5 days what his Minimal Residual Disease (MRD) is. I pray that is it 0! That would be so wonderful. That would mean that he did not have any leukemia left in his body. This test is 1000 times more sensitive than the one they did a few weeks ago.

Because Grant is considered High Risk becuase of the PH positive chromosome, he is getting a bunch of chemo today. Three chemo meds injected into his spine to be exact. I have read the side effects and of course they all mention weakness. It stresses me out because I do not know how this will impact his walking. The good news is that last night at 6:00 p.m. he took his last does of Predinsone - the steroid that they think is causing the walking issue. I hope he starts to be himself again. If you could see him, it would break your heart. He has no energy to play, walk, much less talk. It is like pulling teeth these days to get my sweet boy to talk or laugh. I hate it!!! I just want my boy back - all back. I hate all of this sooo much!! I just had to hold him again as the Dr.s put him to sleep in my arms and then watch his eyes roll back in his head as I laid him on the table. This whole thing just sucks.

Please pray for me to pull it together today and put on my good face for when he wakes up and that the medicine he gets today does not make things worse. Please pray that he walks and laughs again. That is all I want. For him to walk and laugh.



 

About Me


Melanie McTaggart I am the proud mom and Claire and Grant. I am so blessed to have them in my life!

Wednesday, June 24 - 11:40 a.m.

Posted by Melanie McTaggart on Wednesday, June 24, 2009
Okay. Hard day for me. We are up at clinic today and Grant is getting his bone marrow biopsy and his spinal tap. The results of these tests will tell us in the next 3-5 days what his Minimal Residual Disease (MRD) is. I pray that is it 0! That would be so wonderful. That would mean that he did not have any leukemia left in his body. This test is 1000 times more sensitive than the one they did a few weeks ago.

Because Grant is considered High Risk becuase of the PH positive chromosome, he is getting a bunch of chemo today. Three chemo meds injected into his spine to be exact. I have read the side effects and of course they all mention weakness. It stresses me out because I do not know how this will impact his walking. The good news is that last night at 6:00 p.m. he took his last does of Predinsone - the steroid that they think is causing the walking issue. I hope he starts to be himself again. If you could see him, it would break your heart. He has no energy to play, walk, much less talk. It is like pulling teeth these days to get my sweet boy to talk or laugh. I hate it!!! I just want my boy back - all back. I hate all of this sooo much!! I just had to hold him again as the Dr.s put him to sleep in my arms and then watch his eyes roll back in his head as I laid him on the table. This whole thing just sucks.

Please pray for me to pull it together today and put on my good face for when he wakes up and that the medicine he gets today does not make things worse. Please pray that he walks and laughs again. That is all I want. For him to walk and laugh.